In 2010, to celebrate my tenth year of a wonderful life on dialysis I sort of got in shape and canoed 225 miles with the Grand River Expedition 2010. It was an incredible journey that couldn't have happened without my family and many dear friends.

I have been on dialysis since 2001 and have used every form of dialysis currently available in search of the best outcome and the best life. I have done in-center hemodialysis, at home hemodialysis with a traditional dialysis machine, peritoneal dialysis and finally, NxStage's System One home hemodialysis machine. I have had two kidney transplants, one from my beautiful wife and another because a thoughtful motorcyclist had checked the donate organs line on his license. For me, the technology for a successful transplant does not exist for my disease. I remain open and optimistic about wearable and implantable artificial kidneys.

Since I started my first blog, Tasty Kidney Pie, in 2001, I have tried to, and hope to continue to, inspire dialysis patients and others living with chronic illnesses to get outdoors and live an active and fruitful life.

Since 2001, The Riverdudes, my National Kidney Foundation of Michigan Walk Team has raised $78,000.

I currently spend my time writing, raising my children, snuggling with my wife, getting outside and staying active, and hopefully inspiring others along the way.

Thank you

With your help we can exceed this year's goal of $5,000 for the National Kidney Foundation of Michigan. Thank you very much for your continued support. Erich



Saturday, October 25, 2014

For all of you who donate blood, thank you.  If you have ever wondered who receives it, well I got a pint of Mid-Michigan's finest last night.  The graft in my left bicep that I use for daily at home hemodialysis is like a garden hose.  A garden hose that sits under a steel rake that keeps getting stepped on. The act of puncturing the the hose repeatedly flattens it and makes the holes larger.  Those larger holes allow the water to come out faster.

It has been Shocktober at our house.  Instead of water coming out of the hose, I have had blood coming out of the worn out holes in my graft and down my arm.  Sure, I try to work up the hose where there are no holes, but puncturing virgin skin hurts.  Human nature to is to avoid pain.  To do that is to puncture where the scar tissue is; where the graft is flatter and has more holes.  As the blood comes out of the large holes it is under pressure and it takes more gauze and more pressure from me holding the gauze to stop the flow so that it can clot.  This can get to be a bit messy–Dexter messy.

I'm thankful that when needed my family steps up to hand me more gauze or help change the pads I use to protect the tray table that I use.  I feel terrible that my fifteen year old son has to sometimes help and wonder what impact it has on him emotionally.  But, he doesn't flinch and is just there to do whatever needs to be done.  Incredible.  My wife shares most of the burden with me.  Again, my guilt is heavy that she has to see me like this, but, she too doesn't question and gets elbow deep in to it.

This time we had this happen too many times in a row and before I knew it my moderate anemia plunged.  When you lose blood you lose the building block of blood, iron.    Without iron no matter how much Erythropoetin (yes, the stuff Lance used to increase oxygen carrying blood cells) I inject into my belly, the blood count just can't increase.  Kidneys normally make the protein that works with blood marrow to create red blood cells.  Without kidneys then it is very difficult for your body to produce red blood cells.  When you spill too many of those precious oxygen carrying nuggets on the table you are in for a world of hurt.  It is difficult to breath let alone climb the stairs.  Sleeping becomes your day.  The kind of sleep that doesn't replenish.

Because of your generosity, I was got up this morning and made a nice breakfast for my family.  A pint of blood generally increases hemoglobin by a point.  That point has made a tremendous difference today with little labored breathing and little coughing.  I'll probably have to sit on the couch and watch football the rest of this beautiful fall day, but I'll call it a success if I don't take a nap.

Thank you for donating blood.  It has made a difference in my life for me and my family today.
Posted by at No comments:
Subscribe to: Posts (Atom)